Tuesday, June 6, 2017

2 Year Transplant Anniversary Already!!!

Can you believe it's been 2 years already? Time has flown by for certain!  I'm trying to make each day count.  I owe so much to God and to my donor's family.  God has been so good to me!  I am beyond blessed!  As the saying goes-better than I deserve.  I can still recall getting my phone call a few minutes after 10:30 AM from Julie, stating they had a match for me. I remember how my heart ached for my donor's family knowing they had lost a loved one and was grieving somewhere.  Wanting to comfort them with a hug.  I remember the emotions. The anticipation of whether or not it was the moment, or if it would be a dry run.  Waking up in ICU and seeing my family.  Noticing a difference in my body upon waking up from surgery.  Being able to eat my first meal.  Getting off TPN. And the list goes on.  I don't want to go back to the old Jamie.  God has given me a second chance at life and I want to live it to my fullest.  I feel like I see things in life differently now.  I don't want to take life for granted. Enjoy the simple things and cherish moments more. There's some bumps, but they're bumps and nothing too big for God.  You take things one day at a time and realize bad days come but good days are on their way. Thank you for all your love, prayers, and support for myself and family along my journey.  Please keep my donor's family in your prayer also, especially this week. May God surround them with comfort and peace.  It's not easy losing a loved one, especially a child. 

With Love, 

When I was 88 pounds. 
A week ago.  To God be the glory!! 

Saturday, April 29, 2017

Catching up

Things have been a bit crazy and I've definitely fallen behind on updating my blog.  Sorry for the lack of updates.  I don't even know where to begin, but let's see if we can get it going...  I had the surgery on March 10, and all went pretty well besides a few hiccups. I had multiple kinks in the intestines that they had to fix and bring my intestines back up.  They also put in a chimney ileostomy again, like I had in the past.  Not sure if it's temporary or permanent. They will wait a year to decide, which is absolutely fine with me.  I need a break and left alone.   This was a lot bigger surgery than I was expecting and it took me back a few steps.  Thankful I am moving forward. I feel so blessed to have the prayers of family, friends, and even strangers.  God has brought me through and is so good to me.  My heart aches for those that I know who are struggling and worse off than myself.  I am so thankful I'm in my Makers hands and he knows what's best for me, even when I don't. I've met some wonderful people along my journey and can only pray that I can be an encouragement and blessing to them. 

We got in time to celebrate Kelsey's birthday.  Hard to believe that she turned 16 years old!   Wow!  She did get her drivers license also.  Watch out people, she's on the road!! Don't say I didn't warn ya. Ha! No, she's a good driver.  Still working on the interstate driving a lil, coming on and off the exits basically. She has become a beautiful young lady who loves the Lord and is a hard worker. I'm proud of her.  She just finished schooling for the year. 

Kailey and Matthew are doing well with their schooling. They are behind in Math for the year and trying to get that finished up.  Matthew is cleaning at a local office once a week and starting to mow yards.  That boy loves to mow and work outside. He enjoys helping Shane at the shop whenever he can also. Kailey is enjoying babysitting. She does that about 2 times a week. The kids are trying to save up their money to go to camp this July. They are excited about it. I'm so proud of them.  They are big helpers!  I love my kiddos so much!  God sure has blessed me!

Shane has moved his shop in Princeton to 611 North Plesant Street. It's behind Princeton Pharmacy. It's very nice inside.  He's doing a ribbon cutting May 8 with the city's Chamber of Commerce.  He's going to be serving hotdogs that day from noon till 5:00ish.  So stop on in and check it out! 

We just got back from Cleveland. It wasn't a planned trip.  Sunday, I went to the ER with abdominal pain, nausea, and incisional pain. The transplant Dr's wanted me there Monday am for scopes and biopsies.  We got out of the ER by 11pm,  came home and quickly packed and were on the road by midnight.  We switched out drivers two times, other than we tried keeping the car between the two lines and our eyes opened. We made it there at 8:30 in the morning. The scopes and biopsies looked alright, but with the symptoms they wanted me there a few more days.  We weren't planning on being there that long, but better than turning around and driving right back.  They did more biopsies and scopes and blood work. They also gave me mega doses of steroids through an IV  a few days and increased my oral steroids.  We don't know what is going on, but I did have a partial bowel obstruction along with the intestines pushing on the inner abdominal wall.  We got home Thursday evening. Glad to be home. Just being extra careful on what I eat right now. 

Thank you for all your prayers, support, cards, text, and emails! Also thank you for the donations you make to my funding page at National Foundation for Transplants. We still pay out of pocket expense for the hotel, gas, eats, medications, .....  What a blessing you all have been to me in whatever way you support me. A huge THANK YOU from my heart!


An EXCITED 16 year old

Wednesday, March 1, 2017

Heading for Cleveland soon

Next week, March 10,  I will be having surgery to have either an ileostomy or colostomy placed. I've been waiting for this to happen since December since it was discovered that what is left of my native colon is now diseased.  I'll be in the hospital for a week then have to stay at the hotel for 2 weeks.  So if you don't mind, pray that all goes well and I have a speedy recovery.  

Kids are doing well.  They are staying ahead with their school which they are all glad of so they don't spend their summer doing school. The girls have a youth conference coming up for church in a few weeks. They are excited to be going.  It's a time they have to grow closer iin their walk with God.  
Kelsey just finished her last driving course this week. She'll be getting her license at the end of March.  Watch out people!  Don't say I didn't warn you lol! No, she's a pretty careful and cautious driver. 

In April Shane's Shine Shop will be moving to a new location in Princeton!!! How exciting! It will be on Pleasant street behind Princeton Pharmacy and Carquest.  Things are going well and this year will be his upcoming 10 year Anniversary. 

In December I wrote my donors family asking them if they'd be willing to have direct communication without having to go through the organ procurement organization.  The weekend of Valentines I received a letter stating their contact information and I signed off mine to them.  I sent off my first picture to them.  I can't wait to for the first card directly to me, so I can know more about my donor and his family.  

In February the youth did a Valentine banquet at church as a fundraiser.  They fixed bruschetta and salad, toasted raviolis, spaghetti and meatballs or chicken fettuccine and breadsticks.  They decorated in Italian theme and we ate by candlelight.  At home for Valentine's Day we ate on my Great Grandmas china. The girls helped me fix salad, chicken with BBQ sauce, cheese and bacon, and topped with sautéed peppers.  We also had cheddar biscuits, asparagus, Parmesan noodles, and for dessert we had Oreo dessert parfaits. 

Thank you so much for all your prayers!  I know I'm not fighting this alone, God is right beside me each step of the way.  Also I know that I have the support of you all through your prayers, love, text, emails, and cards.   Thank you!!


Sunday, January 8, 2017

Reporting From Room 419

Happy 2017 to you all! The year went by fast! I hope that you all had a wonderful Christmas! We had a wonderful time with family and friends, enjoying Christmas music, hot cocoa, and car rides to see the lights around town. Sitting at home and enjoying the lights glowing in the room. I enjoyed baking cookies and sweet treats with the girls. We waited till the week of Christmas to get my shopping and wrapping done with the help of the girls. What a blessing they are. They are at the age they want to wrap and decorate the packages themselves. They even helped me send out Christmas cards. We even went Christmas caroling to one house by accident but found the correct one to sing to. Most of all in the midst of it all we still found the joy of celebrating the true meaning of Christmas. God manifest in flesh, came to earth as a little baby to save us from our sins. What a hope we have in Him! 

 I made a return visit to Cleveland at the beginning of December for a road bump. I had to get some testing done once I got back home. Unfortunately the test shows that what is left of my native colon is diseased so I will be needing to have the colostomy back. The transplant team is booked till March, so I have a ways yet before surgery. I am on the cancellation list also just in case there's one. 

I am currently posting this from a river side view at KSB room 419. I started having sinus pressure and a headache on Wednesday evening. Things continued to get worse and I had a low grade temp all day and night Thursday. When I called Cleveland Friday morning they said to go to the ER. So when I got there and had blood test run, CT scan of chest and sinuses, influenza swab, and strep throat swab. The ER Doctor said that the CT results showed pneumonia and a sinus infection. I was admitted and put on 2 IV antibiotics and breathing treatments and 2 breathing appliances to help open up the passages. Not a good way to start my year off, but I have much to be thankful for through it all! God is still Great and has brought me through another test. There's a song that's been going thru my head today and the chorus goes, "I know that I can make it. I know that I can stand. No matter what may come my way my life is in His hands. God is so good to me! I'm so glad that my life Is in His hands." And now 'm getting out today!

 The kids have definitely enjoyed having their Christmas break time. Back to school for them today. I think they are sorta ready to get back into some routine again. Matthew enjoyed helping Shane at the shop a little last week. They all enjoyed late nights and sleeping in. Matthew has a little cleaning job on Thursdays and Kailey babysits once a week. Kelsey has helped Shane a few times at the shop. The girls are taking piano lessons and are enjoying that. They are realizing the importance of practicing. 

 I can't thank you enough for all the cards, emails, texts, monetary gifts, and most of all the Prayers! Words can't express our gratitude for the love and support you have shown to us. Thank you so much!  

With Love,