Monday, April 30, 2012

Quick Update

I'm sure some of you are wondering what is going on and why I have not posted.  Sorry, but I have been busy and the times I was going to post I was not feeling up to it.

I ran a temp again the week after being home from the hospital and had cultures done on the line again.  All came back clear...Praise the Lord!

I went to the Ortho doctor two weeks ago in regards to the hip replacement and we are just going to keep on eye on the hips with X-Rays every 3 months.  Nothing substantial found to warrant that big of a surgery  Praise the Lord!!

The Neuro doctor discharged me.  He said I have mild peripheral neuropathy and also autonomic neuropathy.  For the autonomic, I could have more testing but even if I did, it wouldn't matter regarding treatment.  I have a low blood pressure and dizziness.

Today we went to Rockford for the Rheumotoligist follow up and she did a cortisone injection in each hip.  Yes, I am sore and hurting, but this too shall pass.

I go Wednesday to Chicago to see the surgeon who placed my pacemaker to have it checked. It is now sitting on part of my hip bone. They are concerned of it having dropped since the leads can pull out of the stomach and get tangled in the intestine or be "shocking" another organ.  We are at a point, I believe, of needing to make the decision of it being placed back up or having it removed.  He will need to be in contact with the Dr's from University of  Chicago so we are all on the same page in agreement of the choice made.  If I have it removed, then I have worse nausea than I already fight is the only thing.In the mean time, I will continue to trust God for my miracle.

So thankful for the strength He gives me day by day.  So thankful for Him being by my side and being so faithful.  So greatful that He cares and understands and will never leave me through all this, but continue to guide my steps.  He keeps pouring His blessings upon me.  I can't imagine going through all this without God on my side and my wonderful loving husband.

Sunday, April 8, 2012

Home Sweet Home

God is good...all the time!  On Thursday night, I was admitted to the hospital for pain in my 'Hickman Line' port entry area and up into my clavicle and a low grade temp that I had since Monday afternoon.  The doctors were hoping to rule out a port infection and with much prayers, thankfully it was ruled out.  Not sure if it was phlebitis or not, but it sure hurt (and still hurts).

Anyhow, I was discharged on Saturday and home by 2:30 that afternoon.  So glad to be home and resting in my own bed.  No blood pressure checks or nurses coming in to bring me medicines, or any pokes for blood!:)  I do miss someone answering my call light!  I keep waiting for someone to come.  Ha!  Shane and the kids have been wonderful at helping and taking excellent care of me.

So thankful God gave me strength to make it to church tonight!  It felt so good to be in the presence of God, especially on Easter.  Glad I just don't go to Church on holidays because it would be a long time till Christmas! :)  So grateful for His LOVE and Sacrifice HE made so that I could live.:)

At home in bed for the night and letting the kids do a camp out on our bedroom floor.  Oh what fun.  Hearing them all giggle, just can't help but smile.  SO much to be thankful for!!  I am Blessed!!!!!!

Tuesday, April 3, 2012

A Few More Things...

I feel like a whirlwind has come through, but so thankful God is my Comfort and Peace in the storm.  I received a phone call from Chicago saying they received a letter from the Rheumatologist and that the report shows that my hips are not in good shape.  I have had pain for the past few years and it has worsened the past 6 months. It is from the malnutrition.  They are concerned that it will break just by walking and requested I see an Orthopedic doc ASAP.  They had me cancel out the knee surgery and focus on the hips.  They want me to have hip replacements to both hips. Both before they break and I fall or before they get worse. I have an appt on Mon.  

Since Monday evening I have had a low grade temp and tenderness around my port site that has gotten worse since last week.  My In Home Care Nurse suggested I see the surgeon regarding it to make sure I don't have an infection.  Went today to see him and not sure if it's a low grade port infection.  I'm on Bactrim right now and if things get worse then get in touch with him, otherwise call him Thurs. and give an update.  So glad I wasn't admitted.  I thought I'd better pack my bags just in case.  I always have a suitcase ready to go just in case I ever get admitted I have everything all together.

     My inlaws are here from Texas visiting us ( I mean the kids). :)  It has been a fun time.  It will be sad to see them go.  Feels like they just arrived. Got a big day planned tomorrow.

Praying I get a good nite sleep.  God has been so good to me and to my family.  I am so blessed!!  Don't want to fail to give Him THANKS for all He has done and is going to do!