HOME :)

We made it home last night. :)  It felt so good to be in my own bed.  My TPN and supplies were all here at the house.  Shane unloaded the vehicle and it did not take long for me to get hooked up and in the bed:)   I sat my phone alarm so I could take my meds and not get off track.  That is probably one of the hardest things for me when adjusting back to home.  I am the one who has to draw them up and administer them, too!  I have 3 meds that are by IV and one that I do through the J-Tube, so it's not too bad.  It is just so good to be at home with my FAMILY.  

I woke up around 10 and by 11 or so my blood sugar was under 60!  I was feeling pretty shaky so I did a blood sugar check and called to see what to do.  I think tonight I'll check it before bed and maybe early morning to see what it's doing.  The TPN is running at 12 hours instead of 16 and it is so nice.  I am enjoying the freedom of no backpack:)  

Today, I was able to enjoy the kids coming home from school.  The simple little things like a BIG hug, hearing about their day, and the famous words, "I'm hungry!" or "What's for snack?":).  I had fun going through their folders in their backpacks.  Hearing Kailey practice her  recorder.  Listening to all the fun and excitement of their day.  Just sitting in my bed with Matthew and reading a book.  

My wonderful husband came home tonight and with the kids brought up the totes and we put the Christmas decor all away.  I did a little here and there, the kids had a blast tearing down, I mean taking down:), the tree.  I'm sure in the summer, or when I am feeling more up to it, I'll try to go through and organize the boxes a little better.  It feels good to at least have a little bit of the house back in order.  ahhh

Tonight, I am enjoying the sounds of bath water running for kids.  Hearing them play together.  Listening to them laugh and giggle.  The kids going up and down the stairs.  The sounds of suit cases being unpacked. Receiving some much needed hugs and kisses.  

God is so good, and I feel so blessed!

Hopefully the last post from room 5 :)

I am posting from room 5 of the OB/GYN unit hopefully for my last time. I had my EGD today and the doctor who did it was so nice. He sat himself at the edge of my cart and just talked about my history with the gastroparesis, then about my husband and his job and about the 3 kids. When it was time for the procedure, he came and got me by himself and wheeled me to the procedure room. All went well with the procedure and looked good with the J-Tube. :) I did have some polyps, but he didn't want to remove them today and cause bleeding to start. So glad that nothing else was found. I don't need any other issues going on. Taking it easy tonight and I should be getting discharged tomorrow!!! Shane is packing up the hotel tonight so we can hopefully head from the hospital to being on the road to HOME.:)

I am also going to be having more calories added to my TPN but only be on it for 12 hours a day. They are changing that, starting at 10 pm tonight.:)

So grateful to the Lord for wonderful staff. The Doctors, Residents, RNs, Aides, & Transportation people have all been beyond wonderful. :)

There is a song I've had going in my head yesterday and just thought I'd share it with you. I need your mercy, I need your grace, I need your Hand leading the way. I can't make it without you, not for one day-cause I need your mercy and I need your grace. It's a beautiful song and how very true-I don't want even one step that I take through all of this... to be without being with HIM. I don't want to do it by myself or ever think that I can. I need HIM by my side guiding my every step I take on this journey. I know I am never alone and he is right there beside me faithful & everything I need. To God be the Glory. :)

Thanks for all the prayers, love, and support!!!

Love-Jamie

Posting from room 5

I never did get to explain what floor I am on at Cleveland Clinic. :) I'm on the OB/GYN unit! :)) No worries, that is not the reason for the nausea and vomiting. They were full in the GI floor and since they were low census I was placed here. I have been well taken care of! :) They know that my tray HAS to have a cherry icee.;) It feels so good on my throat.

Both teams came in today. The nutritional team added more protein to my TPN and changed the phosphate. The GI team said it was a no go for the EGD with balloon today so tomorrow instead. I had the RN check to be sure that I was on the schedule with a time instead of trying to just pencil me in somewhere. I am down for 1 pm to have it done Wed, Jan 9th. They are just wanting to check the area where the J-Tube is with the redness I have on the outer opening of the hole.

Thank you for all your prayers! God is Faithful! :)

I'm still here at the hospital

I'm sorry for not updating sooner, thank you for understanding and being patient. :)

Wowsers!! Thank the Lord that Sunday is behind me!! It was a very rough day to say the least. By the time I got to feeling well enough to call Shane, he was already in the hospital and on his way up to my room. He came in and I explained how I was feeling and wasn't up to any company. They stayed about maybe 30 minutes and he wasn't feeling well himself with a head cold and stuff so they headed to have lunch and go to the hotel and do laundry and rest.

Thank the Lord for answering prayer though. I was able to start making a turn for the better by late that evening. With Sunday being so rough for me, the GI team decided to look at the J-Tube by endoscopy so I woke up thinking today I would be added on. Well...they were unable to get me in so praying that tomorrow there is a cancel and they add me on. I am still having pain, nausea, and dry heaving, but greatful to not be vomiting. :) I am so glad to feel like the worst is behind and don't want to go back to that point again. They are adjusting my TPN so it is causing my blood sugars to go crazy above 200, and into the 60's other times.

The staff here has been so wonderful and great. My dear husband deserves a huge steak dinner and the precious kiddos a day at Chuckee Cheese to be a kid all day. They have been very good the times they've come to visit. Matthew had some handcuffs he was playing with today and a nurses boyfriend who is a policeman stopped in to show his real cuffs to Matthew. He took a little time to have some "boy" talk:). It was so cute.

I thank you once again for all your prayers, love, and emails of encouragement. God is Faithful! A song that has gone thru my mind tonight I've been humming is-“I need you more, more than yesterday. I need you more, more than words can say, I need you more, than ever before I need you Lord, I need you more.” I can't remember the verses, but oh just to lean on HIM, knowing He is more than enough and able to see me through. To just lean on the everlasting arms!

Love-Jamie  

It's a new day! :)

It was a start of a new day today and I'm so thankful for God answering prayers!!! I'll take my miracle day by day or all of it at once. I just can't thank Him enough for a better day. I have had dry heaving but not vomiting. Ahhh!!! :) I'm still in Cleveland Clinic Hospital. The RN and Aides are super nice along with the Residents and Dr's. The game plan when admitted Thursday was discharge on Sunday, but I still need to turn a few corners yet. I have gone from 2 people assisting me to the restroom to one. :) I'm still exhausted over doing the littlest of things. Just wears me out to do even talk sometimes. I do force myself to sit up for a while so I don't lose all my strength. I did have an Endoscopy down my throat Friday. Due to me vomiting they put me under all the way, in case I would aspirate. It showed that I had some inflammation in the stomach. They ruled out no blockage -thank you Lord! Also while there they changed my G-Tube to a 18 french to a 24 french (now my terminology-the opening of the hole of where the G-Tube goes is larger). They wanted to see if that might help the stomach content to pass quicker. I got to my room last evening and for the most part slept till this am. Today I was able to eat 1/4 of a cherry popsicle and a Italian Cherry ice. I was nauseated and dry heaving. But ohhh it felt so good to my throat. Ahh :0 Tomorrow I hope to hear from the Dr's of a game plan for the rest of the stay.

While praying for me, please pray for my sweet Husband and 3 precious kiddos. This isn't what we had in mind for them. They have been wonderful and done well for being couped up in a hospital since Thursday. They also have gone on walks to give me rest so they are exploring the hospital. They have discovered a McDonald's, Subway, their own cafeteria, and a Mexican Restaurant. There are some Au Bon Pain cafe's here and a Starbucks for you coffee lovers. :)

Time for me to sleep between a 12 am blood draw, 1 am meds, 4 am blood draw and 5 am meds. Thank you so much for all your prayers, phone calls, and emails. What a blessing! I am thankful to be here and for God's strength He has given. I have renewed strength while I wait.
Love-Jamie

In Cleveland

Post by Shane

Jamie has been admitted to the Cleveland Clinic Hospital for further testing to figure out what's going on.  She's in a really weakened condition right now with all of the vomiting.  

Thank you for all of the prayers.

Arrived to Cleveland

We have arrived to the hotel here in Cleveland.   It was a rough trip for me, but thankful for all those who prayed that I could endure the trip.  My appointment is tomorrow afternoon.  I hope to update my blog once we get back to the hotel tomorrow.  I am still very nauseated and throwing up several times.  Thank you for all your prayers!!!!! :)